THE MEANING AND CONSEQUENCES OF AUTISM DIAGNOSIS IN BRAZIL

Main Article Content

Juliana Vieira de Araújo Sandri
Fabiola Hermes Chesani
Carina Nunes Bossardi
Pollyana Bortholazzi Gouvea
Kristien Hens

Abstract

Autism Spectrum Disorder is a neurodevelopmental condition associated with atypicality in behavior, communication, and social interaction. The diagnosis is made using internationally defined criteria, with multidisciplinary evaluation and the use of validated scales. The objective of this study was to present the meaning and consequences of the diagnosis and intervention of autism in Brazil. A qualitative study was carried out with thematic categorical analysis, using semi-structured interviews through vignettes. Eight health professionals, ten autistic people and ten family members of people with autism participated. The data revealed two thematic categories: 1) Diagnosis of autism and its consequences and 2) Therapeutic intervention for the autistic person. Obtaining an early diagnosis of autism is important for access to adequate therapeutic support, in order to improve clinical behavioral manifestations and self-recognition. Multidisciplinary actions are necessary and significant to improve the quality of life of autistic people. They recognize that the responsibility for the success of diagnosis and treatment is shared between family, school, health services and health professionals. Drug intervention is a necessary therapeutic support, but its use alone is not recommended and other methods should be included. Early diagnosis can provide the opportunity for autistic people to have their potentialities and needs recognized through therapeutic interventions consistent with individualized needs.

Article Details

How to Cite
SANDRI, J. V. de A.; CHESANI, F. H.; BOSSARDI, C. N.; GOUVEA, P. B. .; HENS, K. THE MEANING AND CONSEQUENCES OF AUTISM DIAGNOSIS IN BRAZIL. Conjuncture Bulletin (BOCA), Boa Vista, v. 19, n. 56, p. 185–212, 2024. DOI: 10.5281/zenodo.13737864. Disponível em: https://revista.ioles.com.br/boca/index.php/revista/article/view/5372. Acesso em: 18 dec. 2024.
Section
Articles

References

ALCALÁ, G. C.; MADRIGAL, M. G. O. “Transtorno del espectro autista (TEA)”. Revista de la Facultad de Medicina, vol. 65, n. 1, 2022.

ALVES, D. B. et al. “Prevalência de Transtorno do Espectro Autista em crianças e adolescentes na região metropolitana de São Paulo”. Revista Brasileira de Psiquiatria, vol. 42, n. 1, 2020.

AMERICAN PSYCHIATRIC ASSOCIATION. Diagnostic and statistical manual of mental disorders. Virgínia: American Psychiatric Publishing, 2013.

AYRES, A. J. Sensory integration and the child. London: Western Psychological Services, 2005.

BRANDALISE, A. “Musicoterapia Aplicada à Pessoa com Transtorno do Espectro do Autismo (TEA): Uma Revisão Sistemática”. Brazilian Journal of Music Therapy, vol. 15, 2013.

BRASIL. Linha de cuidado para a atenção às pessoas com transtornos do espectro do autismo e suas famílias na Rede de Atenção Psicossocial do Sistema Único de Saúde. Brasília: Ministério da Saúde, 2012. Disponível em: Acesso em:20/05/2024.

BRASIL. Protocolo clínico e diretrizes terapêuticas comportamento agressivo no transtorno do espectro do autismo. Brasília: Ministério da Saúde, 2022. Disponível em: Acesso em:20/05/2024.

CDC - Centers For Disease Control And Prevention. Autism and Developmental Disabilities Monitoring (ADDM) Network: Prevalência de autismo nos Estados Unidos. Washington: CDC, 2023. Disponível em: . Acesso em: 05/09/2024.

COSTA, G. O. N.; ABREU, C. R. C. “Os benefícios do uso de psicofármacos no tratamento de indivíduos com Transtorno do Espectro Autista (TEA): Revisão bibliográfica”. Revista JRG de Estudos Acadêmicos, vol. 4, n. 8, 2021.

CRESWELL, J. W. Research Design: Qualitative, Quantitative, and Mixed Methods Approaches. Thousand Oaks: Sage Publications, 2017.

DUARTE, A. E. O. “Aceitação dos pais para o transtorno do espectro autista do filho”. Revista Internacional de Apoyo a la Inclusión, Logopedia, Sociedad y Multiculturalidad, vol. 5, n. 2, 2019.

DURKIN, M. S. et al. “Autism spectrum disorders”. The Lancet, vol. 369, n. 9570, 2007.

FREIRE, L. F. O. et al. “Revisão integrativa: distúrbios motores e o desenvolvimento da linguagem expressiva no Autismo”. Research, Society and Development, vol. 11, n. 1, 2022.

GOMES, P. T. M. et al. “Autism in Brazil: a systematic review of family challenges and coping strategies”. Jornal de Pediatria, vol. 91, n. 2, 2015.

GRANT, J. E; CHAMBERLAIN, S. R. Expanding the definition of addiction: DSM-5 vs. ICD-11. Cambridge: Cambridge University Press, 2016.

HUDOCK, R.; ESLER, A. “Considerações clínicas ao conduzir avaliações diagnósticas para identificar transtorno do espectro autista em crianças pequenas”. The Clinical Neuropsychologist, vol. 36, 2022.

IBGE - Instituto Brasileiro de Geografia E Estatística. Pesquisa Nacional de Saúde 2019. Rio de Janeiro: IBGE, 2019. Disponível em: Acesso em:03/09/2024.

JACOBS, D. et al. “Parents' multi-layered expectations when requesting an Autism Spectrum Disorder assessment of their young child: an in-depth interview study”. BMC Psychiatry, vol. 10, n. 20, 2020.

JOHNSON, C. P.; MYERS, S. M. “Identification and evaluation of children with autism spectrum disorders”. Pediatrics, vol. 120, n. 5, 2007.

LIU, C. et al. “Scalp acupuncture treatment for children's autism spectrum disorders: A systematic review and meta-analysis”. Medicine, vol. 98, n. 13, 2019.

LORD, C. et al. “The Autism Diagnostic Observation Schedule-Generic: A standardized observation of communicative and social behavior”. Journal of Autism and Developmental Disorders, vol. 30, n. 3, 2000.

LOURENÇO, C. C. V. et al. “Avaliação dos Efeitos de Programas de Intervenção de Atividade Física em Indivíduos com Transtorno do Espectro do Autismo”. Revista Brasileira de Educação Especial, vol. 21, 2015.

MAGALHÃES, J. M. et al. “Assistência de enfermagem à criança autista: revisão integrativa”. Enfermería Global, n. 58, 2020.

MATSON, J. L.; SHOEMAKER, M. “Issues in the diagnosis of autism spectrum disorders”. Behavior Modification, vol. 33, n. 6, 2009.

MCPHEETERS, J. T. et al. “Pharmacological Treatments for Autism Spectrum Disorder: A Review of the Literature”. Pediatrics, vol. 146, n. 4, 2020.

MESIBOV, G. B. et al. The TEACCH approach to autism spectrum disorders. Nova York: Springer, 2005.

MING, X. et al. “Cognitive-Behavioral Therapy for Autism Spectrum Disorder: A Systematic Review”. Journal of Autism and Developmental Disorders, vol. 51, n. 5, 2021.

NATIONAL RESEARCH COUNCIL. Educating children with autism. Washington: National Academy Press, 2001.

O'BRIEN, S. “Famílias de adolescentes com autismo: enfrentando o futuro”. Journal of Pediatric Nursing, vol. 31, n. 2, 2016.

OPAS - Organização Pan-Americana da Saúde. “Autismo”. OPAS [2022]. Disponível em: . Acesso em: 05/09/2024.

PELLICANO, E.; HOUTING, J. D. “Annual Research Review: Shifting from ‘normalscience’ to neurodiversity in autism Science”. Journal of Child Psychology and Psychiatry, vol. 63, n. 4, 2022.

PORTOLESE, J. et al. “Mapeamento dos serviços que prestam atendimento a pessoas com transtorno do espectro autista no Brasil”. Cadernos de Pós-Graduação em Distúrbios do Desenvolvimento, vol. 17, n. 2, 2017.

REICHOW, B. “Overview of meta-analyses on early intensive behavioral intervention for young children with autism spectrum disorders”. Journal of Autism and Developmental Disorders, vol. 42, n. 4, 2012.

ROTTA, N. T. et al. Neurologia e Aprendizagem: Abordagem Multidisciplinar. Porto Alegre: Editora Artmed, 2015.

RUTTER, M. et al. ADI-R: Autism Diagnostic Interview-Revised. Los Angeles: Western Psychological Services, 2003.

SCHLOSSER, R. W. et al. “Meta-Analysis of Augmentative and Alternative Communication Intervention for Individuals with Autism Spectrum Disorders”. American Journal of Speech-Language Pathology, vol. 29, n. 2, 2020.

SMITH, J. A.; FLOWERS, P.; LARKIN, M. Interpretative Phenomenological Analysis: Theory, Method and Research. London: Sage Publications, 2009.

SMITH, T. et al. “Efficacy of Parent Training for Autism Spectrum Disorder: A Meta-Analysis“. Journal of Autism and Developmental Disorders, vol. 51, n. 6, 2021.

SOUSA, D. M. et al. “Challenges in the early diagnosis of Autistic Spectrum Disorder”. Research, Society and Development, vol. 11, n. 8, 2022.

SPROVIERI, M. H. S.; ASSUMPÇÃO, J. R. F. B. “Dinâmica familiar de crianças autistas”. Arquivos de Neuro-Psiquiatria, vol. 59, n. 2, 2001.

STEFFEN, B. F. et al. “Diagnóstico Precoce de Autismo: Uma Revisão Literária”. Revista Saúde Multidisciplinar, vol. 6, n. 2, 2019.

VANAKEN, G. J. “Cripping vulnerability: A disability bioethics approach to the case of early autism interventions”. Tijdschrift Voor Genderstudies, vol. 25, n. 1, 2022.

VIANA, A. L. O. et al. “Práticas complementares ao transtorno do espectro autista infantil: revisão integrativa da literatura”. Enfermagem em Foco, vol. 3, n. 11, 2021.

VIANA, B. A.; BRITO, K. M.; FURTADO, L. A. R. “Sobre o que Ressoa e Faz Eco: Voz, Música e Lalíngua no Tratamento do Autismo”. Estudos e Pesquisas em Psicologia, vol. 20, n. 2, 2020.

VILAR, A. M. A. et al. “Transtornos autísticos e estratégias promotoras de cuidados: revisão integrativa”. Revista Baiana de Enfermagem, vol. 33, 2019.

WANG, X. et al. “Cognitive Behavioral Therapy for Autism Spectrum Disorders: A Systematic Review”. Pediatrics, vol. 147, n. 5, 2021.